TAND Tips from Families

One of the key goals of the TANDem project is to develop a ‘TAND Toolkit’ of tips, suggestions and advice to families and individuals who live with TSC.

Below we list a few examples we received from families all over the world. Please help us by sending us your tips of what works for you! Your tips may help other TSC families too! Feel free to be as detailed as you like and feel free to add links to helpful websites or resources.

Have TIPS?

Helpful tips from others

Irish TSC Conference, Dublin, 2025

The TSC Conference was a warm, informative and hopeful event which brought families, clinicians and researchers together for two lively days of learning and connection at Trinity College Dublin, Ireland, 31 October – 1 November 2025.

Dysregulated behaviours

Self-care is extremely important for caregivers. You must take care of yourself to take care of others. Exercise, therapy, time with friends and family away from loved one with TSC.

Submit Your Own Tips for Others