The launch of the TAND Toolkit App took place on World Rare Disease Day, 28 February 2026. Watch this recording to hear more about the TANDem-2 project and how to register and use the app to track TAND over time!
In this short video aimed at families, Anna Jansen and Petrus de Vries talk through the consensus recommendations presented in the 2-page summary document.
An update on the TANDem-1 and TANDem-2 projects by Anna Jansen and Petrus de Vries.
Validation of the self-report quantified Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders Checklist (TAND-SQ)
International consensus recommendations for the identification and treatment of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND)
Development and feasibility of the self-report quantified tuberous sclerosis complex-associated neuropsychiatric disorders checklist (TAND-SQ)
