The TAND consortium set out to develop a set of international consensus recommendations for the identification and treatment of TAND. These focus on the seven natural TAND clusters (Autism-like, Dysregulated behaviour, Eat/Sleep, Mood/Anxiety, Overactive/Impulsive, Neuropsychological, and Scholastic clusters), and an eighth wraparound Psychosocial cluster.

We are delighted to announce that the new checklist, the TAND-SQ, has been developed and is now published in the journal of Pediatric Neurology. The full checklist can be accessed via the article and can be used freely by families and individuals living with TSC.

Thank you to all our presenters who made the 2023 TAND Mini-Symposium such a great success! We had approximately 80 participants attend the event and engage in fruitful discussions about a wide range of presentations on TAND topics. Read further for access to the abstracts and recording of the event.

On TSC Global Awareness Day (15 May) we celebrate the power of research in partnership with TSC families. Watch this short movie to learn more about the TANDem project.

An international group of experts in the TAND consortium met with local families, clinicians and researchers to present up-to-date information on TSC, TAND, the TANDem project, and discussed issues of local interest to participants in round-table discussions.

In this report we present key milestones over the last year and highlight some important and exciting activities and achievements by the TAND consortium during this period. It was exactly 10 years ago, in 2012, that the term ‘TAND’ (TSC-Associated Neuropsychiatric Disorders) was coined at an international consensus conference in the USA.

The TAND consortium hosted an online Mini-Symposium in April 2022. Emerging and established TAND researchers across the globe were invited to submit abstracts for short ‘rapid fire’ presentations on their research.