The TAND consortium was well represented at the annual International Society for Autism Research (INSAR) conference, held in Seattle, USA, 30 April – 3 May 2025. Two posters were presented, highlighting exciting developments in the global effort to close the identification and treatment gap for Tuberous Sclerosis Complex Associated Neuropsychiatric Disorders (TAND).

We are very excited to announce the publication of the authorised Chinese versions of the TAND-L Checklist! Two versions – a Traditional Chinese and Simplified Chinese TAND-L Checklist – are now available on the TAND Consortium website.

The TAND consortium met together in Antwerp, Belgium for the multidisciplinary TANDem-2 Project Planning Workshop from 2 – 5 November 2024. The goal of this meeting was to adopt a participatory research approach to plan and prepare for the TANDem-2 project: ‘Closing the Gap to Interventions for TAND’.

To celebrate TSC Global Awareness Day (15 May), we would like to highlight all the activities of the TANDem project in this compilation of annual reports. We salute all the families who participated across the four years of the project. Thank you for your time and interest in the project – your participation ensured the successful completion of the TANDem project!

The TAND Consortium was represented recently at the International Child Neurology Congress in Cape Town from 7-10 May. Profs Anna Jansen, Petrus de Vries, Darcy Krueger and Dr Tosca-Marie Heunis all gave talks related to ‘Managing the complexities of TSC’.

One of our TAND consortium members, and recipient of TSA seed funding, Shoba Srivastava, recently presented a poster at the South African Association for Child and Adolescent Psychiatry and Allied Professions (SA-ACAPAP) conference in Stellenbosch, South Africa, on 7-9 March, 2024.

Welcome to the final report on the TANDem project. In this report we will summarise key activities, achievements and celebrations from year 4 of the project and present some overall reflections on our journey with the TANDem project.