TAND Toolkit App registrations reach 100!

We are delighted to announce that over 100 TSC family members from 16 different countries have registered on the TAND Toolkit App as part of the TANDem-2 project! This study is using the TAND Toolkit App to learn about how TAND severity changes over time. A big thank you to all the individuals with TSC and their caregivers for helping us collect this information on the app. 

We invite you to join this community and put your country on the map! Adults with TSC or caregivers of individuals with TSC are invited to register on the app and track their TAND severity using the TAND-SQ on the app 5 times over the course of one year. 

Please visit the ‘Join TANDem-2 page’ for more information and links to register on the app. We are aiming to gather TAND severity information from 500 people with TSC and/or their caregivers. Please join and enjoy all the benefits the app can bring, including a Toolkit of evidence-informed tools and tips for dealing with various TAND behaviours.

Click here to view testimonials from individuals and caregiver’s who have already started tracking their or their loved one’s TAND journey over time using the TAND Toolkit App.