TAND Consensus Recommendations
Family-focused introduction to the TAND consensus recommendations
In this video Anna Jansen and Petrus de Vries introduce the TAND consensus recommendations to families
Our family representatives Katie Smith and Jan-Paul Wagenaar, along with the TAND consortium, prepared a 2-page summary document of these consensus recommendations to share with families. We are working on translating this document into several different languages.
In it, you will find a summary of the 10 core principles guiding identification and treatment for all TAND, and the consensus recommendations for each of the eight TAND clusters. You will also find links to the full published recommendations paper, a short family-focused movie about the recommendations prepared by Anna Jansen and Petrus de Vries, and links to the TAND toolkit and the TAND consortium website.
We encourage you to share these widely among your family and clinical networks in order to promote standards of TAND care for those living with TSC!
International Consensus Recommendations for the Identification and Treatment of Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND)
[jneurodevdisorders.biomedcentral.com]
10 Core principles for the treatment and identification of TAND
[tandtoolkit.org]
Cluster specific recommendations for TAND
[tandtoolkit.org]
Download a 2-page summary in your language
Download
- English (UK)
- Dutch
- Hindi
- Italian (coming soon)
- Portugese (coming soon)
- Spanish (coming soon)
New translations coming soon. If you would like to help translate this document into your language, please contact us (info@tandconsortium.com) to get the translation template.