Multidisciplinary TAND consortium meets for TANDem-2 Project Planning Workshop

The TAND consortium met together in Antwerp, Belgium for the multidisciplinary TANDem-2 Project Planning Workshop from 2 – 5 November 2024. The goal of this meeting was to adopt a participatory research approach to plan and prepare for the TANDem-2 project: ‘Closing the Gap to Interventions for TAND’. This project was recently funded by the Congressionally Directed Medical Research Programs (CDMRP) Tuberous Sclerosis Complex Research Program (TSCRP). 

At the meeting were family representatives, researchers, clinicians, and technology partners from 14 countries, speaking nearly 20 different languages! Attendees were given an overview of the TANDem-2 project goals and timelines, and provided invaluable input on a range of aspects of the project, such as the consent process, recruitment and retention strategies, study flyer design, study variables and app design features. We also had discussions on how to share findings and outputs of the TANDem-2 project to positively impact the TSC community throughout the project. Each consortium member committed to serving on a range of working groups over the course of the project. We are looking forward to an exciting collaborative project!