Mary is from The Republic of Ireland and has an adult daughter living with TSC. Now retired, Mary worked in several healthcare positions for over 50 years and has brought that knowledge and experience to her voluntary work as a patient advocate. Her advocacy efforts stem from both her daughter’s diagnosis of TSC thirty years ago and the death of her eighteen-year-old son to SADS (Sudden Arrhythmogenic Death Syndrome) twenty years ago. She continues to bring the patient voice to numerous projects and committees at national and international level. Relevant to her work for TSC, she currently sits on the EURO Steering committee of the World Patient Alliance (WPA), the ITHACA ERN (Intellectual Disability Telehealth and Congenital Malformations and Intellectual Disability), the Irish Rare Disease Clinical Trial Network (RDCTN) management team and PPI (Public and Patient Involvement) committee, and the TSC Ireland committee.

Mary has finished her PhD on TSC in Trinity College Dublin, and will continue to expand research into TSC in The Republic of Ireland.